I promised the brutal truth, well strap in, because here it is. I never realized the isolation I would feel when Ella was diagnosed. How little I would suddenly have in common with my friends, with other parents. If you know someone or have a friend that's a special needs parent, this will give you an insight to how they may feel, if you're a special needs parent, you are not alone. Click here to find out more.
I think about the phrase the day's are long, but the years a short, and while I most certainly agree, it feels like the last 9 years have flown by! But when I really think about it... well...
Poop... not something I enjoy dealing with to be honest, and as luck would have it Ella has had poop issues for her entire life. And she also has a tendency for 'smearing'. If you don't know what it is, it could be sensory seeking or behavioural, and its basically smearing poop. Its uncomfortable. Its… Continue reading Let’s talk about poop
I'm sure you've all seen the video of Quaden floating around, I'm not going to share it because, to be frank, it's fucking horrible. Personally I would never be able to share a video like that of any child, I wouldn't be able to just film and not comfort my poor child. The poor boy wishing he was dead because he's being bullied endlessly at school. My heart breaks for him. No child should feel that way - NO ONE should feel that way. That being said, I don't blame the mother AT ALL for sharing. She's obviously at her wits end, and she's started a conversation that NEEDS to be had - to be quite honest, I admire her bravery. Looking at the comment section of anywhere these videos have been shared makes me sick - grown adults bullying this mother, who is obviously struggling. They're calling her all sorts of names, all while also being mad at the children doing the bullying! It's maddening, and it's a cycle that has to stop. It's not easy being different, and it's definitely not easy seeing your child being bullied because of those differences. I don't even really blame the kids that are doing the bullying, because in all likelihood its learned behaviour. (Although if it were Ella being bullied, I couldn't help but be livid at the kids too!) All of us adults sharing the hashtag #istandwithquaden isn't enough. It's the latest viral trend, and it will fade out, we will forget and move on with our lives, and this poor family will never be able to forget it. You NEED to have the conversation with your kids! You need to sit them down and tell them, bullying is NEVER ok. You need to have to conversation about kids that are different. Kids that look different, or act different. We need to be raising our kids to welcome the differences. We, as parents, need to DO better. #westandwithquaden #stopthebullying #stampoutbullying #dobetter
Well another 6 and a half hour round trip, to The Royal Children's Hospital to check on Ella's teeth (and visit the fish of course - the meerkats are still on vacation lol) done and dusted! With the addition of a few stops for lunch and for Ella to stretch her legs takes nearly 4… Continue reading Teeth update!!
It was my birthday, 12/12 - BIG 35! I told joel I want a special birthday this year, a full day to myself to relax, drink wine, bake, have a bath, watch movies. I was going to jam pack that day with ME TIME! 10am - I was baking scones when the phone rang. Ella's school number popped up on the screen. I hate to admit it but inwardly I groaned... I had a full day planned!! "Ella's had a fall and chipped a tooth" I told Joel I'd be back in an hour (Ella's school is 40ks away, about half hours drive) gave Reece a wave and off I went on what would turn out to be one of the worst days ever.
What do you see in this picture?I'll tell you what I see. I see a child that's absolutely frigging proud that she'd dressed herself, so proud infact she wanted a photo after I made such a big deal if it. Usually she waits for me, and I help. I point out where the front and… Continue reading What do you see?
Firstly - welcome to all our new friends, I'm blown away by the response I received in the last few days! Much love to everyone supporting us! 💚 Secondly - What a year!! 🥳This has probably been the most challenging year for me and my mental health, We've had so many highs and lows, but… Continue reading New Year
But there I was in that room, at 3:30am, instead of sleeping I sat next to Ella in that very same spot and marveled.
I marveled at the room I was in, the same walls I stared at blankly for hours on end while my mind raced just 8 years ago.
and I thought about when I was here last. And who I was then.
The girl that doesn't exist
I felt like I was staring down the tunnel of forever, with nothing but blackness, there was no end, only darkness.
And then it happened
I was driving when it popped up on the dash
And that was it
The beginning of the end
And now, as I sit to write this down, they've finished their snack and are happily playing. Reece quietly doing the shape sorter that Ella still struggles with, and Ella, playing with a stuffed toy and a car thing that Reece has grown out of and it clicks.
"She's so far behind"