Ella, Special needs parenting

Why I would change my daughter if I could

Special needs parents say all the time 'I wouldn't change them for the world' and that's great for them. But for me, I would change things in a second, if I could! I know that makes me sound like a horrible person but let me explain.

Ella, Special needs parenting

To mainstream or not to mainstream – the biggest choice we make as special needs parents

Making the choice to send your child to a specialist school or a mainstream school is an extremely personal and sometimes controversial one,  No special needs parent takes it lightly.  There's so much to consider, it depends on each individual childs needs, the area you live in, what schools are available and so much more.  - This post is based on my own personal experience, and is merely one opinion, and an insight into how I came to my decision.

Special needs parenting

Come Play With Me

I rage against the world as I see confusion on her perfect face. I wish I was stronger, I want to scream, to cry, to shake them, make them understand.  To make a god damn scene.

Parenting

Social Media

Most nights before bedtime, I try to do some kids yoga with Ella. It's a great way for her to unwind, and also great for her balance, which she still has a lot of trouble with. Sometimes she'll even do it herself, as Ive got the photo visuals laminated on her wall! I'm sharing this for 2 reasons, 1 - because it makes me look like a fantasic parent, and 2 - because I feel guilty that a couple of hours ago I lost my shit because Ella did not want to get dressed, which then caused a naked meltdown of epic proportions that lasted nearly an hour and ended with both of us in tears, proving I'm not, in fact, a fantastic parent, most of the time I'm pretty fucking mediocre. Just like yoga, It's all about balance... 🤷 cont...

Ella, Special needs parenting

greif

Not going to lie, this one was tough to write. My two biggest losses in life, my father, and a child that never existed. - How I deal with grief.

Ella, Parenting, Special needs parenting

Physical vs emotional Tiredness

Physical vs emotional tiredness. So, I have a secret - My 8 month old Doesn't Sleep, but nothing quite compares to the tiredness that comes with a special needs child. Here's my 2am ramblings about why.

Diagnosis, Ella, Special needs parenting

Flashback

7 years ago I was still sitting in hospital, with my tiny baby that was born 3 weeks earlier, with no answer, no hope and no idea. The drs had just started talking about genetic testing, I felt like a child, lost and alone.

Parenting, Special needs parenting

Why I’m a stay at home mum, and why that reason shouldn’t matter.

I came across this article a while ago and I wanted to talk about it.  The article addresses why so many special needs mums 'don't work'.  That is, don't work outside the home.  the work that goes on behind closed doors is something people that haven't been in the situation probably don't understand. All mums Rock, and we should just stop with the judgement.

Ella, Parenting, Special needs parenting

Reality Check

Reality Check - There's nothing wrong with being realistic when thinking about the future for my special needs child. - and here's why... You can hope for sunshine, but still pack a damn umbrella.

Random Ramblings

What I learned after 2 weeks ‘offline’

My phone fried and I was forced to interact in the world without a smartphone for 18 days Here's what I learnt so you don't have to!