I promised the brutal truth, well strap in, because here it is. I never realized the isolation I would feel when Ella was diagnosed. How little I would suddenly have in common with my friends, with other parents. If you know someone or have a friend that's a special needs parent, this will give you an insight to how they may feel, if you're a special needs parent, you are not alone. Click here to find out more.
I looked at her perfectly round face, and her beautiful nose, with its wide bridge, her eyes, set wider apart. I looked closer at the folds in the corners of her eyes, and I looked at her cute little ear tag, I noticed her tightly held fists. I thought about all the people that commented on her cry, the woman that poked her head into Ella's pram when she was just new baby exclaiming "oh, it sounds like you have a cat in there!" Genuinely surprised to see it was my baby instead. All the jokes about how I spent too much time with my cat while I was pregnant because Ella sounds like him. This medical book, written long before Ella was born, was describing her features perfectly. The book feeling like it weighs a million tonnes on my lap, to mach the weight I felt in my heart.
I've seen that 'the last time' video floating around (If you haven't seen it, watch it here ) and it's made me think about the last time I thought it was going to be ok. For me, it's not like a breakthrough lightning strike moment. It's the little things. The moment I realized that Ella would never… Continue reading “The Last Time”
With Ella's behaviour spiralling out of control and her self harming becoming worse, after talking to her paediatrician, we have decided to try medications to help her. here's what I've learnt so far. People are judgemental turds
I don't have time for a breakdown right now, But I can feel it creeping up. We've had a rough couple of weeks, Ella's behaviour has been horrible. Full meltdowns at seemingly at everything for seemingly no reason. Toilet time? Meltdown Dinner? Meltdown Time to get dressed? Meltdown Breakfast? Meltdown It gets worse - She… Continue reading Keeping it Real
So your child has just received a diagnosis.. Welcome to the club that no one wants to be part of, but I can promise you, That this club, with all its ups and downs, is full of amazing, inspirational and strong people.
Having a special needs child has been a journey unlike anything I could have imagined, there's Been the lowest of lows, but also the highest of highs. Ultimately Ella has taught me so much, and having the honour of being her mum has been so rewarding. Here's what she's taught me.
4 years since I bought Ella her first toilet seat. 3 years since we started actively toilet training. 1 year since We really dug our heels in, and along with the school went 'nappy free' almost full time. And Today, I feel defeated. I feel like giving up, I'm wallowing in misery, and you know what? I'm allowed, I'm not sorry and I don't give a flying ...
School holidays can definitely be a challenge for us. As I'm sure is the case with most families, boredom is the enemy, and we fight it all holidays! So comment below/message/inbox/email, your school holiday activity ideas! (Bonus points if they need minimal equipment or input from me 😂) let's share all your holiday parenting hacks!!
This morning, we were all up early (thanks Reece) and ready so I figured, fuck it, we'll head off half an hour before we usually do, it's the last day of school. We weren't even past our property line, that it hit me She can walk!
It hit me like a freight train. It was just like any other day, nothing new or exciting, a tiny little things just just set it off. It seems the grief is never ending, it just coming in waves.