Diagnosis, Ella, Special needs parenting

The book

I looked at her perfectly round face, and her beautiful nose, with its wide bridge, her eyes, set wider apart.  I looked closer at the folds in the corners of her eyes, and I looked at her cute little ear tag, I noticed her tightly held fists. I thought about all the people that commented on her cry, the woman that poked her head into Ella's pram when she was just new baby exclaiming "oh, it sounds like you have a cat in there!" Genuinely surprised to see it was my baby instead.  All the jokes about how I spent too much time with my cat while I was pregnant because Ella sounds like him. This medical book, written long before Ella was born, was describing her features perfectly. The book feeling like it weighs a million tonnes on my lap, to mach the weight I felt in my heart.

Diagnosis, Parenting, Special needs parenting

Down the Rabbit Hole We Go

With Ella's behaviour spiralling out of control and her self harming becoming worse, after talking to her paediatrician, we have decided to try medications to help her. here's what I've learnt so far.  People are judgemental turds

Diagnosis, Special needs parenting

Who am I, Who was I and Who would I have been?

For some new mothers, they slip into motherhood effortlessly, Toting their tiny babies around in clean prams, with perfect hair and pre-pregnancy jeans, sipping chai latte's and chatting. For me, Cafe's and Latte's got replaced with hospital canteens and cheap coffee, coffee dates turned into appoinmappo after appointment, oohing and aahing over my baby replaced by "whats wrong with her" and a thousand questions I couldn't answer.

Diagnosis, Ella, Special needs parenting

Flashback

7 years ago I was still sitting in hospital, with my tiny baby that was born 3 weeks earlier, with no answer, no hope and no idea. The drs had just started talking about genetic testing, I felt like a child, lost and alone.

Diagnosis, Special needs parenting

Cri Du Chat – my awareness week information 😁

Here is all you need to know about Cri Du Chat, a rare genetic disability that most people have never heard of! Cri Du Chat awareness week is coming soon, once you read this, you'll know more about it than most of the professionals I've seen!

Diagnosis, Special needs parenting

Growing up

I had to grow up, and fast. I’m no longer just a parent, I have to be so much more. I’m her voice, and her advocate. This is her diagnosis story.

Diagnosis

Welcome to the world, here’s your diagnosis.

Less than a month after Ella was born, she was diagnosed with cri du chat, a syndrome I could barely pronounce, let alone ever heard of.   The day my life changed - this is our story When Everything changed

Diagnosis

The post that spawned a blog.

No one talks about the things we fail Since having Reece it's become so clear to me just how different it is with Ella, and that If I didn't have Ella first I would have no idea just how different it could be. These feelings caught me completely by surprise. It's almost like it made… Continue reading The post that spawned a blog.