I rage against the world as I see confusion on her perfect face. I wish I was stronger, I want to scream, to cry, to shake them, make them understand. To make a god damn scene.
Not going to lie, this one was tough to write. My two biggest losses in life, my father, and a child that never existed. - How I deal with grief.
Physical vs emotional tiredness. So, I have a secret - My 8 month old Doesn't Sleep, but nothing quite compares to the tiredness that comes with a special needs child. Here's my 2am ramblings about why.
7 years ago I was still sitting in hospital, with my tiny baby that was born 3 weeks earlier, with no answer, no hope and no idea. The drs had just started talking about genetic testing, I felt like a child, lost and alone.
I came across this article a while ago and I wanted to talk about it. The article addresses why so many special needs mums 'don't work'. That is, don't work outside the home. the work that goes on behind closed doors is something people that haven't been in the situation probably don't understand. All mums Rock, and we should just stop with the judgement.
Reality Check - There's nothing wrong with being realistic when thinking about the future for my special needs child. - and here's why... You can hope for sunshine, but still pack a damn umbrella.
If you have a child with sensory eating disorder or food aversions or you know someone who does I can guarantee they've heard these things and more so many times! What would you add to the list?
I'll never forget when Ella started at mainstream kindergarten, and we walked out with all the other kids and their parents, the excited chatter all around us as kids breathlessly described their first day, noise surrounding us, and consuming me, as I headed to sit in the car and read about Ella's day, as written by her aid in the communication book. There was 4 sentences. It was never as bad as that first week, I got used to it.
What I wish I'd been told about having a baby after a special needs child. The decision to have a baby after Ella was not one I took lightly, there was just so much to consider. Read more here.
I've often written and talked about the feeling of isolation, and being alone as a special needs parent. After last week's post focusing on that, I got asked by a few people "well Melanie, it's all very good to whine and moan about it, but how do we fix this!?" Well, after speaking to a few other special needs parents I've put together a simple list of what to do! We may not fix the world, but with enough shares me might make one trip to the park better for one kid. And that's good enough for me!