When Ella was diagnosed with cri du chat, I was told She would never walk. This was a huge blow, but as I learnt more, I realised with physio it might be possible for Ella to be able to do something the 'experts' said she can't - walk
Making the choice to send your child to a specialist school or a mainstream school is an extremely personal and sometimes controversial one, No special needs parent takes it lightly. There's so much to consider, it depends on each individual childs needs, the area you live in, what schools are available and so much more. - This post is based on my own personal experience, and is merely one opinion, and an insight into how I came to my decision.
I rage against the world as I see confusion on her perfect face. I wish I was stronger, I want to scream, to cry, to shake them, make them understand. To make a god damn scene.
Not going to lie, this one was tough to write. My two biggest losses in life, my father, and a child that never existed. - How I deal with grief.
Physical vs emotional tiredness. So, I have a secret - My 8 month old Doesn't Sleep, but nothing quite compares to the tiredness that comes with a special needs child. Here's my 2am ramblings about why.
7 years ago I was still sitting in hospital, with my tiny baby that was born 3 weeks earlier, with no answer, no hope and no idea. The drs had just started talking about genetic testing, I felt like a child, lost and alone.
I came across this article a while ago and I wanted to talk about it. The article addresses why so many special needs mums 'don't work'. That is, don't work outside the home. the work that goes on behind closed doors is something people that haven't been in the situation probably don't understand. All mums Rock, and we should just stop with the judgement.
Reality Check - There's nothing wrong with being realistic when thinking about the future for my special needs child. - and here's why... You can hope for sunshine, but still pack a damn umbrella.
If you have a child with sensory eating disorder or food aversions or you know someone who does I can guarantee they've heard these things and more so many times! What would you add to the list?
I'll never forget when Ella started at mainstream kindergarten, and we walked out with all the other kids and their parents, the excited chatter all around us as kids breathlessly described their first day, noise surrounding us, and consuming me, as I headed to sit in the car and read about Ella's day, as written by her aid in the communication book. There was 4 sentences. It was never as bad as that first week, I got used to it.