Reality Check - There's nothing wrong with being realistic when thinking about the future for my special needs child. - and here's why... You can hope for sunshine, but still pack a damn umbrella.
If you have a child with sensory eating disorder or food aversions or you know someone who does I can guarantee they've heard these things and more so many times! What would you add to the list?
I'll never forget when Ella started at mainstream kindergarten, and we walked out with all the other kids and their parents, the excited chatter all around us as kids breathlessly described their first day, noise surrounding us, and consuming me, as I headed to sit in the car and read about Ella's day, as written by her aid in the communication book. There was 4 sentences. It was never as bad as that first week, I got used to it.
What I wish I'd been told about having a baby after a special needs child. The decision to have a baby after Ella was not one I took lightly, there was just so much to consider. Read more here.
I've often written and talked about the feeling of isolation, and being alone as a special needs parent. After last week's post focusing on that, I got asked by a few people "well Melanie, it's all very good to whine and moan about it, but how do we fix this!?" Well, after speaking to a few other special needs parents I've put together a simple list of what to do! We may not fix the world, but with enough shares me might make one trip to the park better for one kid. And that's good enough for me!
I promised the brutal truth, well strap in, because here it is. I never realized the isolation I would feel when Ella was diagnosed. How little I would suddenly have in common with my friends, with other parents. If you know someone or have a friend that's a special needs parent, this will give you an insight to how they may feel, if you're a special needs parent, you are not alone. Click here to find out more.
Here is all you need to know about Cri Du Chat, a rare genetic disability that most people have never heard of! Cri Du Chat awareness week is coming soon, once you read this, you'll know more about it than most of the professionals I've seen!
I had to grow up, and fast. I’m no longer just a parent, I have to be so much more. I’m her voice, and her advocate. This is her diagnosis story.