Ella, Special needs parenting

5 things not to say about my childs sensory eating disorder.

If you have a child with sensory eating disorder or food aversions or you know someone who does I can guarantee they've heard these things and more so many times!  What would you add to the list?

Ella, Special needs parenting

Out of touch

I promised the brutal truth, well strap in, because here it is. I never realized the isolation I would feel when Ella was diagnosed. How little I would suddenly have in common with my friends, with other parents. If you know someone or have a friend that's a special needs parent, this will give you an insight to how they may feel, if you're a special needs parent, you are not alone. Click here to find out more.

Diagnosis, Special needs parenting

Cri Du Chat – my awareness week information 😁

Here is all you need to know about Cri Du Chat, a rare genetic disability that most people have never heard of! Cri Du Chat awareness week is coming soon, once you read this, you'll know more about it than most of the professionals I've seen!

Diagnosis, Special needs parenting

Growing up

I had to grow up, and fast. I’m no longer just a parent, I have to be so much more. I’m her voice, and her advocate. This is her diagnosis story.

Diagnosis

The Beginning

Less than a month after Ella was born, she was diagnosed with cri du chat, a syndrome I could barely pronounce, let alone ever heard of.   The day my life changed - this is our story When Everything changed