I looked at her perfectly round face, and her beautiful nose, with its wide bridge, her eyes, set wider apart. I looked closer at the folds in the corners of her eyes, and I looked at her cute little ear tag, I noticed her tightly held fists. I thought about all the people that commented on her cry, the woman that poked her head into Ella's pram when she was just new baby exclaiming "oh, it sounds like you have a cat in there!" Genuinely surprised to see it was my baby instead. All the jokes about how I spent too much time with my cat while I was pregnant because Ella sounds like him. This medical book, written long before Ella was born, was describing her features perfectly. The book feeling like it weighs a million tonnes on my lap, to mach the weight I felt in my heart.
If you have a child with sensory eating disorder or food aversions or you know someone who does I can guarantee they've heard these things and more so many times! What would you add to the list?
I promised the brutal truth, well strap in, because here it is. I never realized the isolation I would feel when Ella was diagnosed. How little I would suddenly have in common with my friends, with other parents. If you know someone or have a friend that's a special needs parent, this will give you an insight to how they may feel, if you're a special needs parent, you are not alone. Click here to find out more.
Here is all you need to know about Cri Du Chat, a rare genetic disability that most people have never heard of! Cri Du Chat awareness week is coming soon, once you read this, you'll know more about it than most of the professionals I've seen!
I had to grow up, and fast. I’m no longer just a parent, I have to be so much more. I’m her voice, and her advocate. This is her diagnosis story.
Less than a month after Ella was born, she was diagnosed with cri du chat, a syndrome I could barely pronounce, let alone ever heard of. The day my life changed - this is our story When Everything changed