Special needs parenting

Waves, grief and the future

It hit me like a freight train. It was just like any other day, nothing new or exciting, a tiny little things just just set it off. It seems the grief is never ending, it just coming in waves.

Diagnosis, Special needs parenting

Who am I, Who was I and Who would I have been?

For some new mothers, they slip into motherhood effortlessly, Toting their tiny babies around in clean prams, with perfect hair and pre-pregnancy jeans, sipping chai latte's and chatting. For me, Cafe's and Latte's got replaced with hospital canteens and cheap coffee, coffee dates turned into appoinmappo after appointment, oohing and aahing over my baby replaced by "whats wrong with her" and a thousand questions I couldn't answer.

Special needs parenting

The ultimate goal – Walking. How we overcame the odds

When Ella was diagnosed with cri du chat, I was told She would never walk. This was a huge blow, but as I learnt more, I realised with physio it might be possible for Ella to be able to do something the 'experts' said she can't - walk

Special needs parenting

Come Play With Me

I rage against the world as I see confusion on her perfect face. I wish I was stronger, I want to scream, to cry, to shake them, make them understand.  To make a god damn scene.

Ella, Parenting, Special needs parenting

Physical vs emotional Tiredness

Physical vs emotional tiredness. So, I have a secret - My 8 month old Doesn't Sleep, but nothing quite compares to the tiredness that comes with a special needs child. Here's my 2am ramblings about why.

Parenting, Special needs parenting

Why I’m a stay at home mum, and why that reason shouldn’t matter.

I came across this article a while ago and I wanted to talk about it.  The article addresses why so many special needs mums 'don't work'.  That is, don't work outside the home.  the work that goes on behind closed doors is something people that haven't been in the situation probably don't understand. All mums Rock, and we should just stop with the judgement.

Ella, Special needs parenting

Out of touch

I promised the brutal truth, well strap in, because here it is. I never realized the isolation I would feel when Ella was diagnosed. How little I would suddenly have in common with my friends, with other parents. If you know someone or have a friend that's a special needs parent, this will give you an insight to how they may feel, if you're a special needs parent, you are not alone. Click here to find out more.

Ella, Special needs parenting

A glimpse into an average afternoon, with Poo

The afternoon I had to clean a bag of pooey clothes, and everything went wrong... A lighthearted look into toilet training a special needs child.

Diagnosis, Special needs parenting

Cri Du Chat – my awareness week information 😁

Here is all you need to know about Cri Du Chat, a rare genetic disability that most people have never heard of! Cri Du Chat awareness week is coming soon, once you read this, you'll know more about it than most of the professionals I've seen!

Diagnosis

Welcome to the world, here’s your diagnosis.

Less than a month after Ella was born, she was diagnosed with cri du chat, a syndrome I could barely pronounce, let alone ever heard of.   The day my life changed - this is our story When Everything changed