Special needs parenting

Tired

This morning I cried, quite literally, over spilled milk. Because I'm tired.  And here's why that's ok.

Special needs parenting

The days are long, but the years are longer

I think about the phrase the day's are long, but the years a short, and while I most certainly agree, it feels like the last 9 years have flown by! But when I really think about it... well...

Special needs parenting

Let’s talk about poop

Poop...  not something I enjoy dealing with to be honest, and as luck would have it Ella has had poop issues for her entire life. And she also has a tendency  for 'smearing'. If you don't know what it is, it could be sensory seeking or behavioural, and its basically smearing poop. Its uncomfortable. Its… Continue reading Let’s talk about poop

Special needs parenting

Bully

I'm sure you've all seen the video of Quaden floating around, I'm not going to share it because, to be frank, it's fucking horrible.

Personally I would never be able to share a video like that of any child, I wouldn't be able to just film and not comfort my poor child. The poor boy wishing he was dead because he's being bullied endlessly at school. My heart breaks for him. No child should feel that way - NO ONE should feel that way.

That being said, I don't blame the mother AT ALL for sharing. She's obviously at her wits end, and she's started a conversation that NEEDS to be had - to be quite honest, I admire her bravery. Looking at the comment section of anywhere these videos have been shared makes me sick - grown adults bullying this mother, who is obviously struggling. They're calling her all sorts of names, all while also being mad at the children doing the bullying! It's maddening, and it's a cycle that has to stop.

It's not easy being different, and it's definitely not easy seeing your child being bullied because of those differences.
I don't even really blame the kids that are doing the bullying, because in all likelihood its learned behaviour. (Although if it were Ella being bullied, I couldn't help but be livid at the kids too!)

All of us adults sharing the hashtag #istandwithquaden isn't enough. It's the latest viral trend, and it will fade out, we will forget and move on with our lives, and this poor family will never be able to forget it.
You NEED to have the conversation with your kids!
You need to sit them down and tell them, bullying is NEVER ok.
You need to have to conversation about kids that are different.
Kids that look different, or act different.
We need to be raising our kids to welcome the differences.
We, as parents, need to DO better.

#westandwithquaden #stopthebullying #stampoutbullying #dobetter

Ella, Special needs parenting

All I Want for Christmas is My Two Front Teeth!

It was my birthday, 12/12 - BIG 35!  I told joel I want a special birthday this year, a full day to myself to relax, drink wine, bake, have a bath, watch movies.  I was going to jam pack that day with ME TIME!

10am - I was baking scones when the phone rang.  Ella's school number popped up on the screen.  I hate to admit it but inwardly I groaned... I had a full day planned!!
"Ella's had a fall and chipped a tooth"
I told Joel I'd be back in an hour (Ella's school is 40ks away, about half hours drive)  gave Reece a wave and off I went on what would turn out to be one of the worst days ever.

Ella, Special needs parenting

Growing Older, Not Up

Ella is turning 8, and today I had an epiphany I wanted to share. Most parents have a certain sadness about their children growing up, it just happens so fast! almost like you turn around and another year has past, you look back on photos and realise your baby, is a baby no more -… Continue reading Growing Older, Not Up

Diagnosis, Parenting, Special needs parenting

Down the Rabbit Hole We Go

With Ella's behaviour spiralling out of control and her self harming becoming worse, after talking to her paediatrician, we have decided to try medications to help her.
here's what I've learnt so far. 
People are judgemental turds

Special needs parenting

For the parent of a newly diagnosed child

So your child has just received a diagnosis..
Welcome to the club that no one wants to be part of, but I can promise you, That this club, with all its ups and downs, is full of amazing, inspirational and strong people. 

Special needs parenting

Defeat

4 years since I bought Ella her first toilet seat. 
3 years since we started actively toilet training.
1 year since We really dug our heels in, and along with the school went 'nappy free' almost full time. 
And Today, I feel defeated. I feel like giving up, I'm wallowing in misery, and you know what?  I'm allowed, I'm not sorry and I don't give a flying ...

Special needs parenting

Stop and Smell the Gum Leaves

This morning, we were all up early (thanks Reece) and ready so I figured, fuck it, we'll head off half an hour before we usually do, it's the last day of school. We weren't even past our property line, that it hit me

She can walk!