Ella is turning 8, and today I had an epiphany I wanted to share. Most parents have a certain sadness about their children growing up, it just happens so fast! almost like you turn around and another year has past, you look back on photos and realise your baby, is a baby no more -… Continue reading Growing Older, Not Up
With Ella's behaviour spiralling out of control and her self harming becoming worse, after talking to her paediatrician, we have decided to try medications to help her. here's what I've learnt so far. People are judgemental turds
So your child has just received a diagnosis.. Welcome to the club that no one wants to be part of, but I can promise you, That this club, with all its ups and downs, is full of amazing, inspirational and strong people.
4 years since I bought Ella her first toilet seat. 3 years since we started actively toilet training. 1 year since We really dug our heels in, and along with the school went 'nappy free' almost full time. And Today, I feel defeated. I feel like giving up, I'm wallowing in misery, and you know what? I'm allowed, I'm not sorry and I don't give a flying ...
This morning, we were all up early (thanks Reece) and ready so I figured, fuck it, we'll head off half an hour before we usually do, it's the last day of school. We weren't even past our property line, that it hit me She can walk!
It hit me like a freight train. It was just like any other day, nothing new or exciting, a tiny little things just just set it off. It seems the grief is never ending, it just coming in waves.
For some new mothers, they slip into motherhood effortlessly, Toting their tiny babies around in clean prams, with perfect hair and pre-pregnancy jeans, sipping chai latte's and chatting. For me, Cafe's and Latte's got replaced with hospital canteens and cheap coffee, coffee dates turned into appoinmappo after appointment, oohing and aahing over my baby replaced by "whats wrong with her" and a thousand questions I couldn't answer.
We almost made it. 2 weeks of school holidays, a week and a half in and it's been great! Joel has been working long hours, and looking after the 2 kids has been hard on my own. I can't leave them alone together because Ella is rough with Reece still, so trips to the toilet have been a family occasion, and showering is out of the question until Joel gets home because Ella freaks out when I shower, and there's been a few moments but all in all its been good! We've had beautiful weather, Ella has loved playing outside. I Even put together a playpen for Reece so I could weed the garden and hang out washing without worrying about Reece chasing the dog. Ella didn't complain about me putting sunscreen on her (which can sometimes be a challenge), or meltdown when it was time to come in. We went and fed the ducks near our house a couple of times, and even though Ella was scared of them, she took it like a champ and kept going back which is huge for her to overcome a fear like that! A few appointments as always but they went off without a hitch. I had a lovely visit from my grandma, who I don't get to see nearly often enough, and Ella was on her best behaviour. We had A couple of visits from the neighbour and her young son played with Ella, which went so well, Ella was so happy afterwards. And then today happened. Today it all came crashing down. We almost made it 2 weeks and I expected it, and I'm sure parents of 'typical' children have these days but I can't help but feel so disappointed. I'm worn out, deflated and just done. It was raining today, so I thought I'd let Ella run around in the rain, it was warm enough and I have let her before and she's always loved the experience! But Not today Complete and utter meltdown after less than 5 minutes because her clothes got wet, (I think) then she wouldn't get changed and the day went downhill from there. She bit herself so hard it left a huge welts on her arm. I had to keep her and Reece completely seperate all day because she just kept lashing out at him, trying to pinch, push, grab, hit. She's been violent and lashed out towards me, Ive been slapped, pinched, my hair ripped out while trying to calm her, or stop her from hurting herself. She's refused pretty much all food, all day. I've watched my usually well natured girl throw things, bang her head on things, self harm, throw herself on the ground and just be violent and destructive - All Fucking Day And that's it. No well written, long-winded thought out post. Just this. Word vomit, written on my phone while sitting on the toilet with the shower running. This is my life. Hopefully tomorrow is a better day, we're off to Wangaratta to meet a new physio. Now Ellas finally calmed down for a while with her iPad before bed, and I'm off to cry in the shower and wonder what the hell I could have done differently today. Ugh. We almost bloody made it.
When Ella was diagnosed with cri du chat, I was told She would never walk. This was a huge blow, but as I learnt more, I realised with physio it might be possible for Ella to be able to do something the 'experts' said she can't - walk
Making the choice to send your child to a specialist school or a mainstream school is an extremely personal and sometimes controversial one, No special needs parent takes it lightly. There's so much to consider, it depends on each individual childs needs, the area you live in, what schools are available and so much more. - This post is based on my own personal experience, and is merely one opinion, and an insight into how I came to my decision.