Special needs parenting

The days are long, but the years are longer

I think about the phrase the day's are long, but the years a short, and while I most certainly agree, it feels like the last 9 years have flown by! But when I really think about it... well...

Special needs parenting

Let’s talk about poop

Poop...  not something I enjoy dealing with to be honest, and as luck would have it Ella has had poop issues for her entire life. And she also has a tendency  for 'smearing'. If you don't know what it is, it could be sensory seeking or behavioural, and its basically smearing poop. Its uncomfortable. Its… Continue reading Let’s talk about poop

Special needs parenting

What do you see?

What do you see in this picture?I'll tell you what I see. I see a child that's absolutely frigging proud that she'd dressed herself, so proud infact she wanted a photo after I made such a big deal if it. Usually she waits for me, and I help. I point out where the front and… Continue reading What do you see?

Special needs parenting

New Year

Firstly - welcome to all our new friends, I'm blown away by the response I received in the last few days! Much love to everyone supporting us! 💚 Secondly - What a year!! 🥳This has probably been the most challenging year for me and my mental health, We've had so many highs and lows, but… Continue reading New Year

Ella, Special needs parenting

Falling

And now, as I sit to write this down, they've finished their snack and are happily playing. Reece quietly doing the shape sorter that Ella still struggles with, and Ella, playing with a stuffed toy and a car thing that Reece has grown out of and it clicks.

"She's so far behind"

Ella, Special needs parenting

Growing Older, Not Up

Ella is turning 8, and today I had an epiphany I wanted to share. Most parents have a certain sadness about their children growing up, it just happens so fast! almost like you turn around and another year has past, you look back on photos and realise your baby, is a baby no more -… Continue reading Growing Older, Not Up

Diagnosis, Ella, Special needs parenting

The book

I looked at her perfectly round face, and her beautiful nose, with its wide bridge, her eyes, set wider apart.  I looked closer at the folds in the corners of her eyes, and I looked at her cute little ear tag, I noticed her tightly held fists. I thought about all the people that commented on her cry, the woman that poked her head into Ella's pram when she was just new baby exclaiming "oh, it sounds like you have a cat in there!" Genuinely surprised to see it was my baby instead.  All the jokes about how I spent too much time with my cat while I was pregnant because Ella sounds like him.
This medical book, written long before Ella was born, was describing her features perfectly. The book feeling like it weighs a million tonnes on my lap, to mach the weight I felt in my heart.

Special needs parenting

Defeat

4 years since I bought Ella her first toilet seat. 
3 years since we started actively toilet training.
1 year since We really dug our heels in, and along with the school went 'nappy free' almost full time. 
And Today, I feel defeated. I feel like giving up, I'm wallowing in misery, and you know what?  I'm allowed, I'm not sorry and I don't give a flying ...

Special needs parenting

School holidays

School holidays can definitely be a challenge for us.  As I'm sure is the case with most families, boredom is the enemy, and we fight it all holidays!
So comment below/message/inbox/email, your school holiday activity ideas! (Bonus points if they need minimal equipment or input from me 😂)  let's share all your holiday parenting hacks!!

Special needs parenting

Stop and Smell the Gum Leaves

This morning, we were all up early (thanks Reece) and ready so I figured, fuck it, we'll head off half an hour before we usually do, it's the last day of school. We weren't even past our property line, that it hit me

She can walk!