When Ella was diagnosed with cri du chat, I was told She would never walk. This was a huge blow, but as I learnt more, I realised with physio it might be possible for Ella to be able to do something the 'experts' said she can't - walk
Special needs parents say all the time 'I wouldn't change them for the world' and that's great for them. But for me, I would change things in a second, if I could! I know that makes me sound like a horrible person but let me explain.
7 years ago I was still sitting in hospital, with my tiny baby that was born 3 weeks earlier, with no answer, no hope and no idea. The drs had just started talking about genetic testing, I felt like a child, lost and alone.
I came across this article a while ago and I wanted to talk about it. The article addresses why so many special needs mums 'don't work'. That is, don't work outside the home. the work that goes on behind closed doors is something people that haven't been in the situation probably don't understand. All mums Rock, and we should just stop with the judgement.
What I wish I'd been told about having a baby after a special needs child. The decision to have a baby after Ella was not one I took lightly, there was just so much to consider. Read more here.
Here is all you need to know about Cri Du Chat, a rare genetic disability that most people have never heard of! Cri Du Chat awareness week is coming soon, once you read this, you'll know more about it than most of the professionals I've seen!
I had to grow up, and fast. I’m no longer just a parent, I have to be so much more. I’m her voice, and her advocate. This is her diagnosis story.