It hit me like a freight train. It was just like any other day, nothing new or exciting, a tiny little things just just set it off. It seems the grief is never ending, it just coming in waves.
For some new mothers, they slip into motherhood effortlessly, Toting their tiny babies around in clean prams, with perfect hair and pre-pregnancy jeans, sipping chai latte's and chatting. For me, Cafe's and Latte's got replaced with hospital canteens and cheap coffee, coffee dates turned into appoinmappo after appointment, oohing and aahing over my baby replaced by "whats wrong with her" and a thousand questions I couldn't answer.
There's too much pressure on mums now. We're living in each other's lives more than ever, every trip to the park edited, polished & uploaded. Perfect, shiny, smiling faces for all 500 'friends' to see, & here's were it gets tricky...
When Ella was diagnosed with cri du chat, I was told She would never walk. This was a huge blow, but as I learnt more, I realised with physio it might be possible for Ella to be able to do something the 'experts' said she can't - walk
Making the choice to send your child to a specialist school or a mainstream school is an extremely personal and sometimes controversial one, No special needs parent takes it lightly. There's so much to consider, it depends on each individual childs needs, the area you live in, what schools are available and so much more. - This post is based on my own personal experience, and is merely one opinion, and an insight into how I came to my decision.
Most nights before bedtime, I try to do some kids yoga with Ella. It's a great way for her to unwind, and also great for her balance, which she still has a lot of trouble with. Sometimes she'll even do it herself, as Ive got the photo visuals laminated on her wall! I'm sharing this for 2 reasons, 1 - because it makes me look like a fantasic parent, and 2 - because I feel guilty that a couple of hours ago I lost my shit because Ella did not want to get dressed, which then caused a naked meltdown of epic proportions that lasted nearly an hour and ended with both of us in tears, proving I'm not, in fact, a fantastic parent, most of the time I'm pretty fucking mediocre. Just like yoga, It's all about balance... 🤷 cont...
Physical vs emotional tiredness. So, I have a secret - My 8 month old Doesn't Sleep, but nothing quite compares to the tiredness that comes with a special needs child. Here's my 2am ramblings about why.
I came across this article a while ago and I wanted to talk about it. The article addresses why so many special needs mums 'don't work'. That is, don't work outside the home. the work that goes on behind closed doors is something people that haven't been in the situation probably don't understand. All mums Rock, and we should just stop with the judgement.
Reality Check - There's nothing wrong with being realistic when thinking about the future for my special needs child. - and here's why... You can hope for sunshine, but still pack a damn umbrella.
If you have a child with sensory eating disorder or food aversions or you know someone who does I can guarantee they've heard these things and more so many times! What would you add to the list?