Ella, Special needs parenting

Growing Older, Not Up

Ella is turning 8, and today I had an epiphany I wanted to share. Most parents have a certain sadness about their children growing up, it just happens so fast! almost like you turn around and another year has past, you look back on photos and realise your baby, is a baby no more -… Continue reading Growing Older, Not Up

Diagnosis, Ella, Special needs parenting

The book

I looked at her perfectly round face, and her beautiful nose, with its wide bridge, her eyes, set wider apart.  I looked closer at the folds in the corners of her eyes, and I looked at her cute little ear tag, I noticed her tightly held fists. I thought about all the people that commented on her cry, the woman that poked her head into Ella's pram when she was just new baby exclaiming "oh, it sounds like you have a cat in there!" Genuinely surprised to see it was my baby instead.  All the jokes about how I spent too much time with my cat while I was pregnant because Ella sounds like him. This medical book, written long before Ella was born, was describing her features perfectly. The book feeling like it weighs a million tonnes on my lap, to mach the weight I felt in my heart.

Special needs parenting

“The Last Time”

I've seen that 'the last time' video floating around (If you haven't seen it, watch it here ) and it's made me think about the last time I thought it was going to be ok. For me, it's not like a breakthrough lightning strike moment. It's the little things. The moment I realized that Ella would never… Continue reading “The Last Time”

Ella, Special needs parenting

Keeping it Real

I don't have time for a breakdown right now, But I can feel it creeping up. We've had a rough couple of weeks, Ella's behaviour has been horrible.  Full meltdowns at seemingly at everything for seemingly no reason. Toilet time? Meltdown Dinner?  Meltdown Time to get dressed? Meltdown Breakfast? Meltdown It gets worse - She… Continue reading Keeping it Real

Special needs parenting

Defeat

4 years since I bought Ella her first toilet seat.  3 years since we started actively toilet training. 1 year since We really dug our heels in, and along with the school went 'nappy free' almost full time.  And Today, I feel defeated. I feel like giving up, I'm wallowing in misery, and you know what?  I'm allowed, I'm not sorry and I don't give a flying ...

Special needs parenting

School holidays

School holidays can definitely be a challenge for us.  As I'm sure is the case with most families, boredom is the enemy, and we fight it all holidays! So comment below/message/inbox/email, your school holiday activity ideas! (Bonus points if they need minimal equipment or input from me 😂)  let's share all your holiday parenting hacks!!

Special needs parenting

Stop and Smell the Gum Leaves

This morning, we were all up early (thanks Reece) and ready so I figured, fuck it, we'll head off half an hour before we usually do, it's the last day of school. We weren't even past our property line, that it hit me She can walk!

Special needs parenting

Waves, grief and the future

It hit me like a freight train. It was just like any other day, nothing new or exciting, a tiny little things just just set it off. It seems the grief is never ending, it just coming in waves.

Diagnosis, Special needs parenting

Who am I, Who was I and Who would I have been?

For some new mothers, they slip into motherhood effortlessly, Toting their tiny babies around in clean prams, with perfect hair and pre-pregnancy jeans, sipping chai latte's and chatting. For me, Cafe's and Latte's got replaced with hospital canteens and cheap coffee, coffee dates turned into appoinmappo after appointment, oohing and aahing over my baby replaced by "whats wrong with her" and a thousand questions I couldn't answer.

Parenting, Random Ramblings

Mum guilt & the pressure to be perfect

There's too much pressure on mums now. We're living in each other's lives more than ever, every trip to the park edited, polished & uploaded. Perfect, shiny, smiling faces for all 500 'friends' to see, & here's were it gets tricky...