Special needs parenting

School holidays

School holidays can definitely be a challenge for us.  As I'm sure is the case with most families, boredom is the enemy, and we fight it all holidays! So comment below/message/inbox/email, your school holiday activity ideas! (Bonus points if they need minimal equipment or input from me 😂)  let's share all your holiday parenting hacks!!

Special needs parenting

Stop and Smell the Gum Leaves

This morning, we were all up early (thanks Reece) and ready so I figured, fuck it, we'll head off half an hour before we usually do, it's the last day of school. We weren't even past our property line, that it hit me She can walk!

Special needs parenting

Waves, grief and the future

It hit me like a freight train. It was just like any other day, nothing new or exciting, a tiny little things just just set it off. It seems the grief is never ending, it just coming in waves.

Diagnosis, Special needs parenting

Who am I, Who was I and Who would I have been?

For some new mothers, they slip into motherhood effortlessly, Toting their tiny babies around in clean prams, with perfect hair and pre-pregnancy jeans, sipping chai latte's and chatting. For me, Cafe's and Latte's got replaced with hospital canteens and cheap coffee, coffee dates turned into appoinmappo after appointment, oohing and aahing over my baby replaced by "whats wrong with her" and a thousand questions I couldn't answer.

Parenting

Social Media

Most nights before bedtime, I try to do some kids yoga with Ella. It's a great way for her to unwind, and also great for her balance, which she still has a lot of trouble with. Sometimes she'll even do it herself, as Ive got the photo visuals laminated on her wall! I'm sharing this for 2 reasons, 1 - because it makes me look like a fantasic parent, and 2 - because I feel guilty that a couple of hours ago I lost my shit because Ella did not want to get dressed, which then caused a naked meltdown of epic proportions that lasted nearly an hour and ended with both of us in tears, proving I'm not, in fact, a fantastic parent, most of the time I'm pretty fucking mediocre. Just like yoga, It's all about balance... 🤷 cont...

Ella, Special needs parenting

greif

Not going to lie, this one was tough to write. My two biggest losses in life, my father, and a child that never existed. - How I deal with grief.

Ella, Parenting, Special needs parenting

Physical vs emotional Tiredness

Physical vs emotional tiredness. So, I have a secret - My 8 month old Doesn't Sleep, but nothing quite compares to the tiredness that comes with a special needs child. Here's my 2am ramblings about why.

Parenting, Special needs parenting

Why I’m a stay at home mum, and why that reason shouldn’t matter.

I came across this article a while ago and I wanted to talk about it.  The article addresses why so many special needs mums 'don't work'.  That is, don't work outside the home.  the work that goes on behind closed doors is something people that haven't been in the situation probably don't understand. All mums Rock, and we should just stop with the judgement.

Ella, Parenting, Special needs parenting

Reality Check

Reality Check - There's nothing wrong with being realistic when thinking about the future for my special needs child. - and here's why... You can hope for sunshine, but still pack a damn umbrella.

Ella, Special needs parenting

The Deafening Silence of a Non-Vocal Child

I'll never forget when Ella started at mainstream kindergarten, and we walked out with all the other kids and their parents, the excited chatter all around us as kids breathlessly described their first day, noise surrounding us, and consuming me, as I headed to sit in the car and read about Ella's day, as written by her aid in the communication book. There was 4 sentences. It was never as bad as that first week, I got used to it.