Special needs parenting

Come Play With Me

I rage against the world as I see confusion on her perfect face. I wish I was stronger, I want to scream, to cry, to shake them, make them understand.  To make a god damn scene.

Ella, Parenting, Special needs parenting

Reality Check

Reality Check - There's nothing wrong with being realistic when thinking about the future for my special needs child. - and here's why... You can hope for sunshine, but still pack a damn umbrella.

Ella, Special needs parenting

5 things not to say about my childs sensory eating disorder.

If you have a child with sensory eating disorder or food aversions or you know someone who does I can guarantee they've heard these things and more so many times!  What would you add to the list?

Ella, Parenting, Special needs parenting

A simple guide to interactions with special needs kids.

I've often written and talked about the feeling of isolation, and being alone as a special needs parent.  After last week's post focusing on that, I got asked by a few people "well Melanie, it's all very good to whine and moan about it, but how do we fix this!?" Well, after speaking to a few other special needs parents I've put together a simple list of what to do! We may not fix the world, but with enough shares me might make one trip to the park better for one kid. And that's good enough for me!

Ella, Special needs parenting

Out of touch

I promised the brutal truth, well strap in, because here it is. I never realized the isolation I would feel when Ella was diagnosed. How little I would suddenly have in common with my friends, with other parents. If you know someone or have a friend that's a special needs parent, this will give you an insight to how they may feel, if you're a special needs parent, you are not alone. Click here to find out more.

Ella, Special needs parenting

A glimpse into an average afternoon, with Poo

The afternoon I had to clean a bag of pooey clothes, and everything went wrong... A lighthearted look into toilet training a special needs child.

Diagnosis, Special needs parenting

Cri Du Chat – my awareness week information 😁

Here is all you need to know about Cri Du Chat, a rare genetic disability that most people have never heard of! Cri Du Chat awareness week is coming soon, once you read this, you'll know more about it than most of the professionals I've seen!

Diagnosis, Special needs parenting

Growing up

I had to grow up, and fast. I’m no longer just a parent, I have to be so much more. I’m her voice, and her advocate. This is her diagnosis story.

Diagnosis

The Beginning

Less than a month after Ella was born, she was diagnosed with cri du chat, a syndrome I could barely pronounce, let alone ever heard of.   The day my life changed - this is our story When Everything changed

Diagnosis

The post that spawned a blog.

No one talks about the things we fail Since having Reece it's become so clear to me just how different it is with Ella, and that If I didn't have Ella first I would have no idea just how different it could be. These feelings caught me completely by surprise. It's almost like it made… Continue reading The post that spawned a blog.